| Name: ShannonV | Date: May 24th, 2006 3:17 PM |
My son is almost 8 years old and he was initially (about age 2 1/2) diagnosed as "delayed" and "they" said that eventually he would catch up with other children his age. It was not until he was 5 that his school psychologists and therapist diagnosed him as autistic. The more I researched his diagnosis and saw all the different similarities of behaviors associated with autism and PDD. The more I confused I got. There are just so many different diagnostic terms that fall within the broad meanings of autism or PDD, like Autism Spectrum Disorders,
Aspergers’ syndrome, Rett’s syndrome, and Childhood Disintegrative Disorder. My son seems to fall into alot of these categories and I sometimes think that it is just easier for professionals to diagnose these children as autistic because it seems to cover a majority of the disabilities these children have.
I personally just want him to be happy and healthy. I want him to grow up in a positive environment and to feel loved. I think that he has better days when he is shown a lot of attention and when we spend a lot of time together. I work full time, go to school full time and have a total of 4 kids at home, so I am worn very thin. But I make it a part of my everyday schedule to spend time with him one on one so that he knows that his Mommy loves him no matter what! For all the parents that are struggling with his or her child with this type of diagnosis, the only thing that I can share with you is that even though our children are so called "different" from others, they ALL want to be shown that WE LOVE THEM UNCONDITIONALLY! ↑ |
| Name: JoAnn | Date: May 27th, 2006 3:07 AM |
| I have an almost four year old son who has not been diagnosed with either ADHD or PDD, but it has been a possibilty or more less a concern. I am and have been looking to get a straight forward diagnosis for him but so far I've gotten confused. I took him to a clinic for dissabilites where he was evaluated by a Psychologist who decided he was completley normal and developing age appropriately. Later that day at the same clinic he was seen by a pediatrician who thought ADHD was the culprit. I'm not sure what to think at this point. As his mother I know there is something going on. Jarrett has always been delayed in his speech among other things. Did any of you have different professionals giving you contradictive information? ↑ |
| Name: jody | Date: May 31st, 2006 9:18 PM |
| hi my 6 year old has not been diagnosed yet,i feel something is going on she has a hard with social skills,she has to have the same foods all the time,she wont wear her shoes and socks,and she will not pee on the potty i try to put underwear on her and she pees all over the floor no matter where u are she says she cant help it.im at my witts end she is very smart though she is good at the computer and drawing.i cant figure her out i have 4 other kids i have never seen this type of behavoior she gets into the same movie5 times a day or more.she does things to upset me and then she will say shes sorry alot of times after even if i dont what shes apoligizing for.she is very clingy too she wont go anywhere with me inless her dad goes to that really bothers me.she will not go to school either i try to bring her and she flips out crying.i dont know what to think any advice would be great.please email me if any good advice at [email protected]. ↑ |
| Name: Tracy | Date: Jun 23rd, 2006 3:10 AM |
| Hi, I have a 10 year old daughter who was diagnosed with PDD-NOS when she was 3 1/2 years old. I also have 2 "normal" children and a 5 year old son who was recently diagnosed with ADHD. I have been taking my son to therapy for the past 5 months and I have noticed some interesting similarities in my oldest daughter (who had PDD-NOS) and my ADHD son. Does anyone else notice any similarities or is it just my kids? They are both a handful at times and since my son has been diagnosed his symptoms have become more prevalent, which affects the dynamics of our family. My oldest daughter is also struggling with the "idea" of having another special needs child in the house. I am amazaed that she caught on to it, but it makes it hard to explain it to her. ↑ |
| Name: Lori | Date: Jun 23rd, 2006 11:21 AM |
| Hello my name is Lori and my son is 3 1/2 and was born with hydrcheplus and was diagnosed with PDD in Janurary around his 3rd b-day. He is so smart, he loves to count and anything with abc's he knows them all and can recon. them all. He has done this for over a year now. He is so advanced on these skills, but he is not potty trained. He would lay in it all day if I did not just check him. He actully fights me , he does not want to be changed. WE have tried his favorite thing THomas underwear and all, with no results. He has great speach now and loves to talk to people, very social child. Very loving child. A year ago he would not really play with other kids but now he is doing better, but he will play for aprox. 30 min. or less and then he would rather lay down and play alone. He acts like he is to tired to play. He gets very upset to change things. He also is very tempermental when he does not get what he wants. Some days I thing there is no way he could be PDD because he is so smart, then other days I say well he has problems, or how could he not feel his dirty diaper, or underwear especiallly. He would not ever come to me to get it off. I then know that he does have problems. Just not sure if PDD is the right diagnosis. He is fearful of doctors and with them he just crys and shakes his head. With me and my family and friends he seems fine except he does shake his head side to side alot. IF anyone would have a few words to tell me or advise me, I would greatly appreciate it. I do not know anyoe with a child like this. I have a home day care and all the children here are different from him. I know all children are different, but I mean I could take them all and group them together, still he would be differnt in too many ways. Any advice Thank You ↑ |
| Name: Lori | Date: Jun 23rd, 2006 11:23 AM |
My recent request for advice today I forgot to leave my email
It is [email protected] ↑ |
| Name: tashia | Date: Jun 23rd, 2006 8:16 PM |
| I am also a mother of a son with PDD. He's 2 and i have an older son who is 4 with autism. The two are in some ways alike but also very diff. It seems as if because my PDD child is not as sever it was harder to get help or really get anyone to say what was turly wrong with him. Even though I knew a year ago what it was we couldn't get a doctor to say for sure until April which ment we wasted all that time he could have been receiving help. ↑ |
| Name: Heather B. | Date: Jul 21st, 2006 5:15 PM |
| My six year old son is main streaming this fall and even though he has come leaps and bounds i'm scared for him children can be so cruel. ↑ |
| Name: Heather B. | Date: Jul 21st, 2006 5:29 PM |
| I forgot to put down my email address [email protected] and to all the moms having trouble potty training there kids I understand I went through books and advice up to my teeth truth is he potty trained almost at five but has to wear overnights due to his meds.so he wont wet the bed.and any advise about social things like little league or cub scouts is it a good idea for children with pdd? ↑ |
| Name: Dsteffe | Date: Aug 1st, 2006 3:46 AM |
| PDD-NOS? Basically means we have no idea yet. My two year old daughter has suffered most of her life with chronic ear infections and is developmentally delayed where speech is concerned. She has services through EI since she was 18months. I think this is sad. How was she supposed to learn how to speak when she could not hear? She just got a second set of tubes placed in March. Since the, she went from no real words to 15. I'm proud. I know it's not much but, she also is a good imitator. I just wish I knew if my daughter will lead a Typical life because of this. She has another Dev. Peds appt in Sept to reevaluate. Her ENT said he thinks her diagnosis is Bull****! But, I know something is not right. Its weird, she has barely there tantrums, very social and cuddly and met all milestones except for speech. I am wondering if she's just going to drop off one day. Or is she just SLOW TO TALK? I think she is the only one who knows. Also, she was on a lot of antibiotics(10) courses in a year and a half. There is a book on Biomedical causes of Autism which is very compelling by Karyn Seroussi. Her kid had a PDD diagnosis and here it was His GI problems and food allergies causing AUTISM SYMPTOMS. He now is fine. Her website is ANDI.com I am looking into this for Alexis. Thank you all for litsening! Stay Strong!!!!! ↑ |
| Name: melodee | Date: Aug 7th, 2006 4:09 AM |
| My child was give the name Asperger, OCD,Aniexity,Sensory Integration problems along with ADHD and all that also falls under HIGH Fuctional Autism and PDD and I really get confuse the more infomation I try to research.I agree there is a line between them I just can't seem to find it or find any one to explain it to me. So I can try to explain it to my husband, grandparents , teachers ,siblings , possible parents of possible friends!! SO good luck on your question sorry that I don't have any answers or sugg. The only thing I have to offer to the topic is more questions. I 've only been dealing with the cause of his behavior for the last 2 wks out of my son 8 years of life. good luck!! ↑ |
| Name: jeniz | Date: Aug 7th, 2006 9:12 PM |
| My 10 year old little boy has been diagnosed with PDD-NOS as well as a non-verbal learning disability. I feel at a loss though when it comes to this diagnosis as far as where do I go from here. The doctor said to get an IEP from the school which starts in like 3 weeks. There has to be more to it than that??? Please, if anyone else has gone through this and moved past the diagnosis stage, please point me in the right direction. Of course my husband and other children and I are changing things at home to accomodate, explaining things more instead of criticizing and not being sarcastic and things like that but, really, there has to be more...... ↑ |
| Name: Paul F | Date: Sep 21st, 2006 12:50 AM |
| Hi, my name is Paul F. and I'm 21 years old with PDD. School has been a struggle my whole life with the exception of math. For some reason, I was always good at solving basic math problems. Socially, I just can't interact with anyone. Some of the things like fixation of certain objects to being "picky" with foods. ↑ |
| Name: Frustrated | Date: Sep 23rd, 2006 3:03 PM |
| Hello Paul, how did you learn your letters in school? My son is 6 and after spending lots of time with counselors, they came up with PDD-NOS but lean towards autism.He is also very picky about food and his "diet" consists of hot dogs, french fries, chicken McNuggets etc. I am trying to figure out how I can teach him the letters. He does not have a problem recognizing numbers but, unless a letter is in his first time which I have to point out for him to recognize, he forgets within 30 minutes what a b looks like, for example.I just talked to the principle to get an assessment done through school since there is nobody in his town who specializes in ASDs. But I know that can take time and I feel that every day that nothing is done puts him a step further behind. ↑ |
| Name: jayme | Date: Oct 7th, 2006 10:47 PM |
| hey im going thoge that same is all of u ↑ |
| Name: JasonandTracy | Date: Dec 2nd, 2006 10:12 PM |
Hello, my 4 year old son was recently diagnosed with PDD-NOS. My wife and I, also parents of younger twin girls, have suspected that there was something different about him over the last year or so in comparison to his peer group and younger sisters. He is a very happy and social child; however, he is obsessed with planes and trains. Almost all of his conversation either starts with or quickly changes to plan and train subject matter. He rarely volunteers information about any other activity he has participated in during the day. He can play by himself for hours with Thomas the Train squinting at the wheels or wings very closely. When we remove the things he is most obsessive with he creates imaginary planes out of almost anything in the room. Ultimately, everything is a plane or train given enough time.
For many months, we thought he was very imaginative. We now know there is a more serious issue. In addition, he can not tolerate any performances or events with bright lights, loud noises or echoes. He immediately starts to panic, covers his ears and cries, “Too loud, too loud”. Once removed from this type of venue he is able to regain composure very quickly. Our pediatrician suggested that he would outgrow this and other quirky behavoir with time; but after several months of hesitation we had him evaluated by a developmental pediatrician, speech therapist and occupational therapist. Over the last six months he has been in speech and occupational therapy twice a week. Just last week we were told, after the second visit with the developmental pediatrician, he has PDD-NOS. Several tests were performed to determine this diagnosis.
The last six months for us have been mixed with joys and triumphs, as well as set-backs. We remained optimistic that after his first evaluation many months ago his speech and motors skills would improve with therapy; however, his obsessive behavior continues to grow stronger. He speech is improving. His continues to develop his fine motor skills. His diagnosis of PDD-NOS has helped us understand his behavior better and his daily challenges better. We are now in a discovery phase of seeking ways to improve his life. Our biggest challenge is finding local resources and guidance in our area. It seems a good number of the support programs our in major metropolitan areas. Any thoughts? ↑ |
| Name: shanak10 | Date: Dec 2nd, 2006 10:44 PM |
If PDD is almost the same as Autism, I understand that by removing all the chemicals and toxics from your home will help them. I have heard of some people who benefited from that. If you need more information please contact me at [email protected]
Shana ↑ |
| Name: Trina | Date: Jan 3rd, 2007 1:25 AM |
Hi! My son is 9 years old and was diagnosed with a "mild case" of ADHD when he was 7. My husband and I have tried all the counseling and meds for 2 years now and not much has changed. Maybe that is because he has always been a straight -A student, very kind and affectionate and well-adjusted.
He doesn't throw fits or talk back and he always finishes what he starts. However, socially he is not quite accepted, he has trouble forming a sentence, let alone making sense when he speaks. He is so hyper that he annoys peers at this age, (relates much better to kindergarteners) and embarrasses his family. I am convinced that there is more going on here than ADHD, and have shared this with our pediatrician, but I don't feel like he belives me. My son blurts out inappropriate statements, he flales his arms and legs CONSTANTLY, he is a good boy and means well but cannot deal like a normal child in public.
I've been told that he is just high-energy but I live with him and watch him constantly. I KNOW there's something going on. I've just learned about this PDD. Although I haven't found any one case or description that matches my son's EXACTLY, it's eerie
how much I've found that I can relate to... I think I'm on the right track here and that he has been misdiagnosed.
Hopefully someone out there understands what I'm talking about and maybe has some ideas/ advice?? Anything would help... I am bewildered and exhausted. Thanks!! ↑ |
| Name: PeterPapas | Date: Oct 5th, 2007 10:16 PM |
| Hello all my 8 year old son has been diagnosed with ADHD and PDD features a couple of years ago. The PDD symptons are picky eater, talks only about stuff he is interested in, poor social skills and so on. We knew their was something wrong with him when he was around three. His speech was bad and always walked on his tippy toes. Anyways he still has problems with brushing his teeth no friends whatsover and I feel terrible for him because he complains about it. What made it worse was the ADHD but we finally found medicine that works with him so their has been a lot of improvement in his school work. In math he is a genius. I was wondering do they eventually grow out of PDD? ↑ |
| Name: ltl | Date: Oct 29th, 2007 5:10 AM |
| Hi PeterPapas, I don't believe they will grow out of it. They are taught and/or learn to work better with it. ↑ |
| Name: Mandalynn313 | Date: Nov 9th, 2007 1:32 AM |
| Hi, my name is Amanda...My son Joseph was diagnosed with PDD in April, right before his 2nd birthday. We have recently put him on a Gluten Free diet. Is anyone else trying this? I swear by it...he has been on it for about a month and a half, now, and has made so many improvements. Lots of little ones...a lot more talking, repeating words clearly and doing the sign for "more" and "all done" on his own, with no physical prompting...Let me know what everyone thinks about this....I really would love to hear what you all have to say. ↑ |
| Name: Mandalynn313 | Date: Nov 9th, 2007 1:38 AM |
| BTW...feel free to email me at [email protected]. I would love to talk to parents outside is Therapy group that are also dealing with this disorder, maybe even eventually setting up a play date or something. Thanks, hope to hear from you soon. Amanda ↑ |
| Name: apryl reign | Date: Dec 7th, 2007 11:57 PM |
| Hi my name is april and my six year old is about 2 undergo his second bout of autism scales. The first time he was three and had red flags, I am worried his head banging and copying statements from the television will give him the label. It would be nice to talk to someone who thinks the same way I do. There is a difference. ↑ |
| Name: rcjones | Date: Aug 31st, 2008 12:52 PM |
| Hi, I'm a "gammy" of a 2 yr old little boy which was diagnosed with PDD 2m ago. We knew somthing was wrong for several months. He will not speak he will say dada and I have had him wave once or twice and say bye-bye but nothing else. I work really hard with him when I'm with him. I read Jenny McCarthy stories and felt I had to do something. I have orderes the "clay" baths for him and also drops that also pull toxins out of his body. Between the two his attention span has increased. We will keep doing these. He loves to be loved touched and kissed he is a very loving child and has always been . Calling his name is a chore he will look at you sometimes and sometimes (most of the time) he will not. he jibberjabbers alot but nothing you can understand. Speech and occupational therapy is starting within the next two weeks. The TEACH program will also began. Does anyone know what else we can do or places we need to research. I will do what ever I can for this child. It breaks my heart for him sometimes when he starres off in space I just wish I could see what is in that pretty little head. Love to hear from any of you with same problems or things you have done and how your child is now functioning after same therapy. GOD BLESS YOU ALL ↑ |
| Name: mamakeene | Date: Sep 8th, 2008 9:45 PM |
| I would also love to find out, my son was diagnosed with PDDNOS and I remember for the 1st year being really misinformed. My husband thought it meant he wasn't even on the spectrum, that it was something completely seperate. When in fact it's an Autism Spectrum Disorder. You really have to do a lot of study on your own and can't rely on the doctors to inform you. Unfortunately you really have to be you and your child's own advocate. ↑ |
| Name: rita | Date: Sep 14th, 2008 4:07 AM |
| My son was diagnosed with autism spectrum disorder - PDD at the age of 3.5. I always suspected this from the time he was about 2.5 years old. There was an obvious speech delay. My husband was in complete denial. I followed through with speech therapy and tried to modify his diet, gave supplements and had him on homeopathy. Thank god, we have seen an improvement. He is now almost 4 years old and he is talking more, but still has his "cloudy" moments. We have to work on the toilet training. I am in the process of trying to get him a dan! doctor but it isn't that easy to find a good one. I recently started the clay bath and also the chelation drops. I have heard about the cassein and gluten free diets...so far we have managed to put him on goat's milk. It is hard to omit the gluten but we are trying in every possible way. I have heard for that diet to really work, it has to be put in full force for at least 6 months. Our local nutritionist told me about gut health and I have him on probiotics and digestive enzymes. The other thing I am giving him is fish oil although I think a dan! doctor is really needed because there are so many recommendations on treating this condition, hopefully the right combo can be applied. ↑ |
| Name: Theresa C | Date: Oct 28th, 2008 8:36 PM |
| my son is 18 months old and he does not talk at all he says babababa when he wants to and thats as far as it goes he will raise his hands up to be picked up but does not point or gesture to other things he gets excited when he sees me and he lights up so he starts flapping his hands and he does this alot when he watched his favorite show and walks to the tv on his toes while he flapps .. his hearing is fine but he does not listen when we call his name or ask him to bring us anything but if hes in another room and hears his favorite show he comes running.. im just concerned because he shows signs of autism but then again he is very loving to me and his dad but thats as far as it goes .. just need some input thanks ↑ |
| Name: gdenham | Date: Nov 3rd, 2008 2:36 AM |
| this is my first time in a chat room. i really dont know what to do. but i need people to talk to about this before i go crazy. ↑ |
| Name: robadrienne | Date: Jan 7th, 2009 1:11 AM |
| I have questions about meds: I know that different kids require different meds, but what is popular with kids with PDD (NOT autism)? Ritalin? Clonidine? Help! ↑ |
| Name: robadrienne | Date: Jan 7th, 2009 3:56 AM |
| I'm replying to "Theresa C" - I was in a similar boat. My son is very affectionate (always has been), and wasn't what I thought an autistic child "should" be like. But, I found out that there are many different kinds and levels of autism; that there is a "spectrum" of behaviors. So, he could have autism and still be affectionate and recognize you or your husband. Hope this helps! ↑ |
| Name: Aautism | Date: Jan 23rd, 2009 12:07 AM |
| Hi uhhh I have a blood disorder and I think I also have Autism or something like it because it fits why I am different I don't make friends easily , I can not look in peoples eyes, I like most of the time just to do nothing , I am interested in things that move and so on yet how do I tell my mom on my autistic quiz it says if you score under 30 your normal if you score 30 to 33 there's a 51% chance you have it if you score 34 and over you have autism I scored 32 so I may have Aspergers syndrome so how do I tell her cause im scared shell say no you dont so stop talking bout it plz I need help ↑ |
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