| Name: Aautism | Date: Jan 23rd, 2009 12:07 AM |
| Hi uhhh I have a blood disorder and I think I also have Autism or something like it because it fits why I am different I don't make friends easily , I can not look in peoples eyes, I like most of the time just to do nothing , I am interested in things that move and so on yet how do I tell my mom on my autistic quiz it says if you score under 30 your normal if you score 30 to 33 there's a 51% chance you have it if you score 34 and over you have autism I scored 32 so I may have Aspergers syndrome so how do I tell her cause im scared shell say no you dont so stop talking bout it plz I need help ↑ |
| Name: Tetyana | Date: Aug 17th, 2010 1:11 PM |
| My 4.5 year old son just diagnosed with PDD-NOS. It is heart braking for parents to go thru all doctors Evoluation , complains in kindergarten. .... My second son is 7.5 years old and he is fine . But lately his litlle brother bites him at his beack very badly. Olsow screatched him on his face and neack , a few times he just grab the plastil toy or the book- and trow it on his older brother , or some time he trows chears at ather kids in kindergarten when he get very upset ower something there. So last time he did that- I been cooled to the meneger office and she. Fired us from kindergarten. She tell me' it is not safe for ethers when my son around ,. So we are home now and looking to find the place to feet in ... It is frustrated ... ↑ |
| Name: tasha1011 | Date: Aug 17th, 2010 4:14 PM |
Tetyana,
My son is now 9 years of age and was diagnosed at age 2 with autism. My son experienced similiar behaviors when he was younger but now, he manages his outbursts. He is now very successful.
Honestly, when he was first diagnosed, I remember telling the psychologist that she could call it "Cucamonga" for all I care. I just wanted help. In other words, the label was not meaningful in and of itself. I needed help with his inappropriate behaviors, help with his anger outbursts, help with his excessive drooling, help with his lack of communication, help, help, help. I received that help through his school district, the Regional Center an an outside speech therapy center.
My suggestion is this, go through your school district. They can provide your son with services, free of charge. Early intervention is important. Look at resources within your community for children with PDD. They will also provide you with help. The school district must accept your son - in other words, he will not be kicked out of kindergarten. They can provide your son with a one-to-one itinerant teacher. My son had this when he was in kindergarten through 2nd grade. He is now in 4th grade and is very independent. Early intervention helped him and can help you too.
You can read more about my son's experiences at my blog http://raisingsucautistic.blogspot.com/ ↑ |
| Name: Tetyana | Date: Aug 17th, 2010 10:39 PM |
Thanks a lot Tasha! I really fill much better after your story. I will try my best to help my boy. And ask for help from his school right after he back at September . I also wish him to lern how to menege his temper and understand the t
Rools around in society . Best regards to you and your boys. !! Tetyana ↑ |
| Name: Tetyana | Date: Aug 18th, 2010 7:16 PM |
| I see that no one wrighting any posts for a wile . What happend? Where is everyone ? ↑ |
| Name: myfirstbaby | Date: Sep 1st, 2010 12:47 PM |
| this site looks nice, i hope to chat with someone abt my son with maybe having pdd. he is 23 months. very mild. ↑ |
| Name: myfirstbaby | Date: Sep 2nd, 2010 2:14 PM |
found this today? i hope to more and more affection as he gets older....... :(
Children with PDD-NOS will show different symptoms. All children grow at a different rate so the symptoms vary with every child. Children with PDD-NOS could have problems with social interaction and issues communicating with parents and peers. These are two of the problems children with PDD-NOS can show.
When a child has delays in social skills, they can show it at a very early age. Babies won?t make eye contact or cuddle. This is hard for parent's to deal with so you should talk to your child's doctor if you notice any of these problems. As the children get older they might enjoy playing by themselves and have no problems not interacting with children their own age. They will have no problem separating from their parents and no problem talking to strangers.
Children with a milder form of PDD-NOS can have different forms of social problems. Some children want friends, but don't know how to make them because of their social problems. As the children get older, they usually become closer to their parents and others that are around often, but don't know how to make new friends and interact with new people.
Speaking and communicating is a problem with some children with Pervasive Developmental Disorder Not Otherwise Specified. Unfortunately, this isn't something that is noticed until the child starts getting older. As babies, they may not babble and parents might find this a blessing not dealing with a noisy baby. However, as they get older they won't speak. On occasion a baby will pick up one word and just repeat it. This will be the only word they say and won't learn anything new.
There are more problems than just learning how to speak. Children with PDD-NOS can have a tough time learning new words, but they will also have a difficult time picking up facial expressions and tone of voice. They won't understand when someone is joking or being sarcastic. They take words literally. Children with PDD-NOS have to learn the distinction between these issues.
Another problem in people with PDD-NOS is dwelling on a certain subject. They will keep talking about the thing they are into and not talk about anything else.
Emotions may be difficult for children with PDD-NOS to show. They tend to be indifferent, but when they do show emotions it's usually to the extreme. These children have outbursts and throw temper tantrums. However, this is also pronounced with sadness, happiness and fear. Any emotion will be pronounced.
These are two of the main symptoms children will show if they have Pervasive Developmental Disorder Not Otherwise Specified. Talk to a doctor if you notice any these conditions to get further tests. ↑ |
| Name: julesmaria | Date: Oct 30th, 2010 7:15 PM |
| My son just turned 25 months. His general mood is that of a very happy child. My story is very puzzling at times. My son started to show red flags of autism around nine months. He would spin toys for 10-15 minutes straight while hand flapping watching it go around and around. I would stick my face near the spinning toy and he would laugh like a little school girl. He went to Mothers Day out for about nine months. His teacher voice concerns about his behavior. He would not maintain a lot of eye contact, not respond to his name very often, and he would at times isolate himself from the other children. By the end of school year when he was around 20 months a lot of this behavior just went away. He now makes good eye contact, responds to his name, and shows interest in other children. He does seem more comfortable around adults. He is now 25 months in OT and speech therapy related to some sensory issue. He is a sensory seeker for the most part. He will get stressed out when he is put in a new situation about 20-30% of the time. He loves deep pressure (bear hugs.) He is very attached to us (parents.) He smiles a lot, but does these atypical behaviors. He will want to carry two everything around in his hands, and he will study the detail of things. He loves books, and he has about 100 words now. He doesn't use the words to have his needs met. He still doesn't say mom or dad, but he will will say thank you etc.... He tends to label more than using recepitive speech. He is social for the most part, but will start the stimming behavior when he gets stressed out. At the playground he will just stand at the top of the slide, and watch other children go down the slide and sometimes flap his hand other times say good job. OT has voice concerns for autism. We are going to several specialist over the next few months. I work at a children's hospital. I recovered patient's on the full range of the spectrum. I see children who function very highly and you would never know had a diagnosis of autism if it wasn't on the chart. It's more confusing when it's your child. My child doesn't fit the typical mold, while I know that no PPD or autistic child is the same. I'm wondering if anyone has a child that showed signs of autism early on and the behavior lessen or disapper. I'm also wondering if anyone has a child that is social and makes good eye contact with autism (it's seems like a catch2/20 to me. I know there are alot of misconceptions out there with PDD and Autism. I know there are amazing children with these disorders who are very intelligent gifted children. Again, just wondering if any one has social autistic child. ↑ |
| Name: rzup | Date: Nov 3rd, 2010 7:00 PM |
| My son was diagnosed with pdd-nos two years ago. He recently started kindergarten. His six years at home were very hard. He wasn't potty trained until he was 4. He threw the biggest tempertantrums that were imaginable. He hit me and bit me, and he attacked his three older sisters. We then started him in preschool, which was hard. He had seperation anxiety. So everytime I left him he threw up. He didn't want anyone but me which was very tiring. I couldn't leave him alone. I can't tell you how many times I pulled him off the top of my fridge. I started him in occupational and speech therapy. He didn't talk until he was 4. Even now he dosen't speak full sentences. Once we started to diminish some of his sensory issues, he became a different boy. He became loving, and most of all I started to get kisses. He even said that he loves me. Amazing. I cried for hours. Finally happy tears. Occupational and speech therapies saved my son and my sanity. Even though the struggles are not over, I can see a light at the end of a very long and loving tunnel. ↑ |
| Name: stevieque | Date: Dec 10th, 2010 12:02 AM |
Anyone here living in the atlanta area who has a child with pdd-nos.
I would like to hear how he/she does in school.
I have a son who is 7 yearsold with this disorder.
Thanks. ↑ |
| Name: stevieque | Date: Dec 10th, 2010 12:13 AM |
Hi Lynn
Is your son/daughter still having fixations? My 7 yr old has the same problem. He has a big fixation on rice butter and ketchup everyday. If he finds something of interest, he will keep at it for a long time.
All the best. ↑ |
| Name: ChristiansMom | Date: Dec 30th, 2010 6:51 PM |
Hi !! I just want to say to all parents with children diagnosed with autism or PDD-NOS, please be strong and hang in there. My son Christian who is now 5 - was diagnosed when he was 4 1/2 with PDD-NOS. At 3, my husband and I noticed that Christian's speech was severely delay -- the specialists had diagnosed him as having severe expressive and receptive language disorders. Deep down inside, I kept wondering if there was an underlying cause for his speech delay -- I even use to think that he was regressing because of his little brother who is almost 2 yrs younger than him?? As a concerned parent, I wanted to rule out any "medical" factors -- such as Down's syndrome or any retardation, etc. (my mind was always wondering about what was causing his speech delay).
But anyway, Christian has been going for speech therapy every week/once a week for almost 2 years. His speech has definitely progressed tremendously and he has been attending a specialized pre-school program n the Pittsburgh area. I just wanted to share my story about Christian to give hope to other families facing similar challenges. Trust me, Christian still has a long way to go as far as this battle with PDD - he still has some behaviorial issues -- fixating on objects (Hot Wheels cars and trucks), he's very sensitive when it comes to get his hair cut and/or shampooed, etc. There are times when he can really be a handful - but patience is very important.
If anyone can share any helpful ideas, that would be much appreciated. ↑ |
| Name: littleChris | Date: Jan 10th, 2011 4:49 PM |
| My child was diagnosed ppd-nos when he was 18 months old and now he is 21 and recently received aba therapy and play therapy. I wanted to find out if the therapy will help him in speech! Is there anyone that their child is currently doing aba and have any thought on this topic? My child doesnt speak any word yet he only has a few vowels. ↓ ↑ |
| Name: ladygwen83 | Date: Jan 11th, 2011 3:50 PM |
| My daughter is 2 years old, about to turn 3 in April. The school system seems to be pushing ABA on these kids but I have read both sides of the ABA argument and I decided on holding off on ABA till she is a little bit older. Our ABA program in California consisted of 4 hours a day after preschool, which would make my daughters day a full 8 hour day. I think 8 hours is a bit much for a 2 or 3 year old. After seeing some of the kids who completed the program some of the appear to behave like little robots. They say words clearly but sometimes they have no comprehension of what the words mean. But for other children this program has positive results my best advice is decided what program works for your child every child with autism is different and somethings work for some but there is no cure all program. Try it and see if it works :) ↑ |
| Name: BrandyB | Date: Feb 20th, 2011 4:22 PM |
| My son is 2. He was diagnosed with PDD around 18 months. He is very bright; however, he talks very little. He says Da, Mama, and yes. He will sometimes shake his head no and will sometimes sign more. He still doesn't sleep through the night and is very hyperactive. He is a very picky eater and won't use a spoon or even feed himself much. Will he ever talk? ↑ |
| Name: littlestep | Date: Jun 13th, 2011 4:42 PM |
| PDD-NOS? My Child, At 18 months stopped using the few words she had learned example "bye, bye baby". She could not speak her needs, do simple step instructions. She would not respond to her name called. She used unintelligent jargon. Frightened of any toy with a face "except one Bear which was made like a blanket - she named it Mimi. Almost the only word she would utter. She did not have acceptable play tactics with other children-just seemed to not understand the "unwritten rules of play", but loved children! She could work simple child computer web cites and simple hand held games starting at age 2. Worked puzzles, shape sorters, mr. potato head etc. Gives me penetrating stares often avoids eye contact with others. She started receiving speech and developmental therapy through a State program. She passed a hearing test. I had her tested by a child psychologist at 21 months and was told "let's wait and see". I have to say that I never sat down, I would always try to help her. She would take my hand and walk me to the cabinet or what-ever and place my hand upon it, then I would have to start by elimination of its contents to see what it was she needed. I took pictures of her favorite things - so she could selected from them. She learned simple sign language and used it. Just before age 3 she was evaluated by a top Speech therapist in the area for entry into public school and she told me that she had never seen a child with such a severe delay as she that had not already shut down. She started preschool on her third birthday (at present she has went through the preschool program 2 1/2 times now) . When she started school she did not respond to "wh" questions. Did not say her name. - as stated above. but Started using two limited words simple sentences. At 4 years old her pediatrician suggested she had PDD-NOS. Gave me a referral to child evaluation center. I refused to send her at this time. Instead, I took her back and had her tested by her child psychologist and was told "she just doesn't fit autism", "I don't know what to think of her", "let's wait and see", "bring her back when she is 5". Her pediatrician later suggested she was Mentally Retarded and I should just except it. I would not. (thank goodness pediatricians can not give a diagnosis to this!!) I called her child psychologist and asked if this was likely and was I in denial. He replied "It's too soon to diagnosis, Let's wait and see, bring her back when she is 5." I "knew" her without using words. I just knew in my heart that all she needed constant interaction. Each day after school I would ask her what she did that day her response would be "school" as it was with most every question I would ask her-she would just repeat the major word, but I could see what was not spoken in her face and in the way she held herself. She was most always a Happy child!! One day after school she got off the bus crying I asked her what was wrong-to my surprise- she answered "Ms SO through my donut in the trash" I Cried TOO. After that day she started using more and more words and called her self her NAME!! At Christmas we talked about Santa coming and at her suggestion put out milk and cookies!! I was never sure that we would ever do this together - My heart was exploding! Since Christmas the turn-of-about have been amazing!! She can say and talk about most everything!! Her pediatrician is without words-at her 5 year check-up she said "isn't this great all she has is a stuffy nose!" I asked her of her former statement and she replied that she was not God and can not judge. The only remains of this .... She has a very short list of foods she will eat and is sometimes brand sensitive ((example - pancakes and sausage (only preformed frozen sausage), pizza (only Totino's pizza) chocolate pudding, yogurt, fruity pebbles with milk and cheerios without milk. Her food list is not much longer than what has been mentioned but with same scenarios. I do fix her a small plate of what we are eating and purchase her a lunch at school each day just incase she ever wants to try something new. Her Teacher says she fixes her plate but she never eats except for Pancake day. ((I do send her a sausage (her favorite) to school everyday)) She repeats Momma, Momma, Momma, Mommy --Momma "constantly" after most everything she says. (music to my ears!!) I have noticed her slowing down a little on the momma's lately. She speaks of herself in 1st person and uses "we" for "me".(she has told me - she has an imaginary friend with same name as her) She uses he and she or him and her in wrong context but does know the difference between girl and boy. She frequently Panics if things are not just as she thinks they should be, she is neat compared to most children her age, she will occasionally spin or walk in circles when upset, nervous or bored. She is now going into kindergarten the the school is wanting to test her for communication status her speech therapist there thinks she may not know the difference between yes and no) - I know she does. If you ask her for example "are you a boy" she will state No - Girl. I am her mother and I know her best. I am going to have her tested for the third time by her child psychologist again this summer. I am very anguish to know what he has to say about her this time. I continue with other evaluations elsewhere if this is his suggestion or if I ever feel the desperate need. This child psychologist of hers does not take insurance so it is expensive but I have been frightened that she would receive a wrong diagnoses at such a young age and she would have to live with that label for the rest of her life. I like the privacy of this. She has a team working for her, her family, teachers, therapist, etc. I am grateful! Whatever was/is going on with her is diminishing and she has largely learned how to control herself. She has a fantastic imagination! She knows so many many many things - like she has been taking it all in like a sponge all this time. There are still times when I do not understand what she is trying to tell me - because she may not be using the correct word and this is can be frustrating for her. I continue to give her all the help I can and look for new ways to help her. My prayers have been answered and I have been blessed -- She talks !!!!!!!!!!!!!!!!""ALL THE TIME""!!!!!!!!!!!!!!!!!! Is there anyone here that can share similar experience with with me? ↑ |
| Name: scupit | Date: Jun 15th, 2011 5:36 PM |
@ julesmaria--My son is 3 years 4 months old and may have PDD. My son showed signs of autism around the 8-12 month time frame. He wouldn't clap, wave, point, or babble. When he started walking, he walked on his tip toes. His first word was at 18 months. He was 2 before he said "mommy." He started clapping, waving, pointing between 18-22 months. So...my worries lessened some. However, he was receiving EI since he is hearing impaired (no hearing in his right ear).
Now that's he's 3 YO, he talks WAY more than he used to. I wouldn't say we have conversations but he definitely makes his needs/wants known. He still walks on his tip toes. We are working on that. I show him how to do it and he copies me. He still can't/won't communicate his feelings to me. He is still doesn't interact with his peers too much. However, he plays with his 1 YO brother very well. I do feel that my son gets stressed out easily. He doesn't do well when we visit my in-laws since they live so far away. And when we have company over, he typically goes to his room and play alone. If it's someone he knows well, he'll say "hi" and he'll play around them for a little while. It's odd to me that my son will talk and communicate with me, but he won't do this when he's around other people, unless I prompt him to. We've started doing a lot of role playing. I'm trying to teach him how to make friends. If you want to talk more, my e-mail is [email protected] ↑ |
| Name: kal | Date: Feb 28th, 2012 10:50 PM |
| OK .. i need help with this .. i have a 5 year old boy i believe he is autistic ..he has a vocabulary of over 500 words but only uses one word sentences .. when pushed he will use 2 or 3 poor eye contact knows all the shapes letters numbers in 2 languages does not point .. does not know how to kiss can count to 10 he has done all of that since he was 4 .. he now mimics elaborate motions he can read all the letters and numbers in 2 languages but the main thing is he is overly independent , will not speak unless is is detrimental and only in one word sentences if possible he has had extensive speech therapy for the past 8 months at that time he would not verbalize anything except songs and such .. was bathroom trained at age 3 and a half not a single mistake since has anyone been in a similar scenario with his or her child oh .. he goes to school with a shadow teacher and is following instructions much better his social skills are almost non exestent ↑ |
| Name: catematthews | Date: Jun 14th, 2012 3:06 AM |
Dear parents,
My friends are doing a short survey to better understand the parents with kids with autism. As a parent of an autistic son myself, I've been helping them with outreach and connecting to other parents and was wondering if you would be willing to participate. The link is here:
bit.ly/M0ykAh
Thank you all very much!
Best,
Cate ↑ |
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