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Name: shaunz77 | Date: Jan 20th, 2011 10:02 PM
I have a 4 year old child with mild Cerebral Palsy as well as seizures and global developmental delays.

Please check out my blog:
http://johnsonspeci
alneeds.blogspot.com
Life
With a Child With Special Needs

Please pass it on if you know anyone interested.

Thank You,
Shauna Johnson 

Name: shauna Johnson | Date: Jan 28th, 2011 11:15 PM
My son Eric is 4 and has mild CP and seizures. I would love to help anyone in need...I started a new blog please take a look.

http://johnsonspecialneeds.

blogspot.com/2011/01/about-eric.html
 

Name: mama33 | Date: Feb 18th, 2011 5:20 PM
Hi,

I have a son who has low muscle tone which resulted in a variety of different developmental delays. I would love to chat with someone whose child has this same issue. My son is 7 years old and one of the things I am dealing with right now is he is not potty trained. He breaks my heart everyday but I love him more than life itself. Does anyone feel this same way? 

Name: Mumof4 | Date: Feb 23rd, 2011 12:30 PM
Mama33..you could be talking about my son .he is 9 and also not toilet trained .. He is just starting to talk and we are thrilled to be able to communicate with him . He is the love of my life . I found as he got older and harder to manage we lost alot of friends . The dinner invites just stopped ..I say there loss ..They just don't see what I see ..He has 3 older siblings who love him . I can honestly say my older children are the beautiful caring young adults because of him ! It gets tough .My little boy weed on a rock a few days ago and we jumped up and down with joy ( neighbours think were nuts) .good luck !! 

Name: Spring | Date: Mar 15th, 2011 9:00 PM
I have a daughter who is 8 (going to be 9) this year and she has been developmentally delayed from the beginning. She is running about three years behind in everything. I have no specific diagnosis outside of developmentally delayed and begnign congenital Hypotonia. We are in the process of fighting out school district because she has been receiving special services for five years through the public school system and there has been progress but not enough to bring her up to grade level and the general education teacher cannot give her the time and focus she needs with 27 other students in the class.

I feel like there is a bigger issue because she has obsessive tendancies and she for the life of her can't share not even with my 18 month old son. She is very difficult to discipline and she is really really rough.

She will be seeing a Neurologist on Thursday. She hasn't seen one since she was two. She didn't learn to talk till 3 and still speaks like a toddler (i.e. "I go," I 8" "He going".)

I am also taking her to be assessed by a Pediatric Psychologist. She can't go backwards either. My ex-husband who normally picks her up from school (in the same spot for two years) dropped her off one day and was about to leave but looked back and she looked lost so he turned back and said "what's wrong?" to which she responded "Where I go?". She was so used to being picked up there but had no idea how to get to class when dropped off. Cause I normally drop her off. 

Name: shay | Date: Mar 17th, 2011 8:07 PM
I have an idea what that's like. My name is shay and I have a 3 year old who doesn't walk,talk , or give eye contact. Sometimes it is difficult coping. It is truly difficult talking to friends who are not in the same boat. I can no longer participate in church activities beacause the demand of taking care of her is alot. I also have a 5 yr old daughter and 4 year old son. Don't get me wrong, i love my daughter and I sometimes feel guilty for feeling overwhelmed and hopeless. I want to know if there are other moms whohave accepted their childs disability but still form time to time feel like youe losin' it. 


Name: Nikki | Date: Apr 7th, 2011 6:55 PM
I have a 12 month old daughter with a developemental delay. She is not crawling, walking, pulling herself up, sitting without support, nor does she have any teeth. It would b great to hear from other moms who can relate to my situation it gets hard sometimes but I just pray and think positive because miracles do happen. 

Name: Nikki | Date: Apr 7th, 2011 7:09 PM
If u wish to contact me my email is [email protected] because I want to talk to other moms its good to relate amd talk to other people who relate to your problems thanks 

Name: Tera | Date: Apr 19th, 2011 2:46 AM
I have a developmentally delayed child as well, but he is 2 almost 3 and on the level of a 9 month old, only he cant even do things like feed himself. noone, no docs or specialists can figure out a 'specific' diagnosis we just know he has slow 'brain activity' its been a long rough 3 years w all the testing he has been through. 

Name: momoftwinsat17 | Date: May 15th, 2011 1:54 AM
Hi I too have a teenage daughter who's now 17 and is mentally ill. I need some advice...... 

Name: momoftwinsat17 | Date: May 15th, 2011 2:12 AM
Hello to all, I too have a teenage daughter who's mentally delayed. she's a twin and she's now 17. There's was a normal 17 year old boy in her school that talked her into having sex, the school thinks it consentual but diagree she has a mind of 10 year olds. The school suspended her. I need an advice. Do you think the school has the right to suspend her for her actions, knowing that she has menta disablity?? 

Name: Annelise | Date: Jun 3rd, 2011 3:34 AM
I have a doughter whos 4 and her doctoer thought it was autism but now hes thinkin developmental retardation 

Name: Annelise | Date: Jun 3rd, 2011 3:48 AM
Lilith is a very happy 4 year old she just asked her first question last week . " Why do I have to go to bed?" atleast thats what think she said. when she was born I counted her toes and fingers and they were all there. It was ok for me to dream about her future and hope. but I'm haveing a really hard time w/ this now and no one seems to get why. My friends kids are hitting their mile stones. I'm rambling sorry but I just need someone to talk to. 

Name: Annelise | Date: Jun 3rd, 2011 3:58 AM
thats the sad side of my feelings here is the anger. If one more person argues w/ me about her condition I may explode all over them. It's hard enough to tell people but to have them tell not to worry she'll snap out of it. that just ticks me of. If anyone can help me my email is [email protected] 

Name: KayOss | Date: Jun 3rd, 2011 5:19 AM
Hello all, I have a special needs 

Name: also_a_mom | Date: Jun 27th, 2011 10:04 PM
hi this reply is actually for sarah. i have a five yr old son matthew and a three yr old daughter rainielle both of them were born 3 mos early. my wife passed away a yr after my youngest daughter was born. i am now raising the kids by myself and both of the are developmentally delayed. i see what you are saying about your son running around yelling and not talkng as my son and daughter are both in that category. it is quite harder for me because i am by myself raisng two dd kids. my son matthew would also repeat over and over what people would say as well as sounds that he hears. when i was reading your reply, i immediately saw my son matthew that is why i am replying. i was in denial until yesterday when someone made me realize that both my kids are dd. 

Name: Paris | Date: Jul 29th, 2011 4:45 AM
I live in NYC and assist many families with medically involved and Developmental Delay children. If you wish to talk, email at [email protected] 

Name: Katie | Date: Aug 4th, 2011 6:42 PM
Hi all..
I am new to this and it seems like a long time ago you all wrote on here so not sure if I'll get a reply? My daughter is nearly 5 months old and due to a traumatic birth has suffered severe brain damage and global delay in development and although I am doing my best for her I feel like I'm letting her down, i can't seem to get her into a routine and and I'm lucky if I get 3 hours sleep at night :( because of this I have little patience and seem lost.. If any of you have any advice it would be great to hear from you x 

Name: Pam | Date: Aug 27th, 2011 4:01 PM
I have a 7 year old daughter Angel. She has a developmental delay, severe speech and language problems, and pretty bad ADHD. She is at the level of a 3-4 year old. She has been receiving speech therapy since she was 2 1/2. And still she cannot answer "Why" questions and to get her to answer any other type of question is like pulling teeth. She is quite aggressive and any form of discipline seems to not phase her. I recently had a son which is now 8 months and my fear is that he will surpass her developmentally at a very early age. So recently I have thought about either pulling her out of school for the year to work solely on closing her developmental gap or finding some type of program to assist while she is in school. And having her repeat the 2nd grade next year. Any opinions on this matter would be greatly appreciated. 

Name: sinead | Date: Sep 1st, 2011 10:01 PM
Hi I have a son who is 9 years old and he can't talk at all is that apart of the global development delay he can say some words but not clearly and can't even have a conversation I get really upset about this sometimes need to know a few answers he has been perscribed to have delayed development I 

Name: Momof5 | Date: Nov 16th, 2011 6:44 AM
Hi I have a five kids and my 4 th child a girl who just turned 2 has developmental delays.
She is not talking she babbles now but nothing that you can make sense of she is just starting to walk with a pediatric walker.
And she will not eat very much.. This is all very overwhelming to me because my other children 3 older and 1 younger are all ok
I feel so helpless with her most of the time because I don't know how to help her she is getting Pt, OT, and special instruction.
Everyone who I talk to has no clue what we are going through..
I thought that maybe it would help to talk to other mom's that are going through the same things 

Name: Julie | Date: Nov 27th, 2011 3:49 AM
hi 

Name: Susan | Date: Dec 16th, 2011 9:12 PM
Hi Cindy, I am the mother od a 24 yr old son with high functional autism.
I know where you are coming from as sometimes others don't understand how you feel and cope.
We were invited to a xmas neighborhood bbq ,1 door down and a family not living in our street was also invited and we took our son who knows the people who invited us very well, well this family had 2 teenage daughters and they were quick to tell our son not to have anything to do with him and they shunned him all evening.Our son tried his hardest to talk and fit in with these girls and I felt so sad for him Cindy, he yearns to make friends his own age. feel free to chat any time with us we live in Gympie, Qld 

Name: Kelly | Date: Jan 2nd, 2012 9:04 PM
hello we have just found out our daughter have very bad low tone in her legs, i was wondering if it is possible for her to get fractures ? 

Name: kelly-elena | Date: Jan 5th, 2012 11:09 PM
Hi, my name is kelly and I have a 9 year old daughter with severe global developmental delay, I don't know anybody else with a child that also has this, she was diagnosed when she was 5 and has had lots of tests and examinations but still nobody knows why she has it? I'm still pretty much in the dark as to what to expect for the future and have been offered no help as nobody seems to know. 

Name: ConnieL | Date: Jan 16th, 2012 7:30 PM
Hi, My name is Connie. I just found this forum and want to join in on the conversation. My daughter, now 28, was born microcephalic with severe brain injury. I was initially told to wait and see how she would develop but we should probably expect some delays. Later, we were told she probably wouldn't ever do much and we should put her in an institution and get on with our lives. We have kept her at home with us all of these years and I home schooled her to give her one on one opportunities. I did have some voluteers to help me at times. She has developed into a remarkable young woman, doing more than anyone ever thought possible. I have come to learn that how our children develop is in a large part dependent on the opportunities they are presented. I am very fortunate to have meet many people along the way that have made a profound difference in my daughter's life. I know sleep deprivation, loneliness and frustration well, but things for you and your child can get better so keep the faith! Faith and hope are a must have in my life! I am currently creating a blog to share information with other parents. You can find me at:
http://specialhelp4specialneeds.com
I do believe that we live in a wonderful time of new opportunities for our children. The understanding of the brain is growing every day. This continually excites me! 

Name: Medinanr | Date: Jan 19th, 2012 10:28 PM
Hi my name is Nilda, I have a 19year old developmentally delayed son, he talks, he uses the computer, he knows how to use cell phone, playstation and lots of other equipment, he his delayed he does not know hoiw to handled money so i got him a debit card, he barely knows how to read or write but he trys, the only problem he his intereste in girls but does not know how to handled rejection, he is not violent the only thing he cannot accept when a girl rejects him for who he is, need help Nilda 

Name: Medinanr | Date: Jan 19th, 2012 10:34 PM
Cindy i know what it takes to deal with a child who is delayed, my son is 19th and he is delayed but in teh past years he knows how to use a computer, cell phone, a debit card since he does not know much about numbers or money , we are christian and i leave it al to God, believe me prays have been answer since it was not suppose to grow up to be 19 they thought he was going to die before his 1st birthday 

Name: parenting4specialneeds | Date: Mar 25th, 2012 12:53 AM
Cindy after 15 yrs no wonder things are so tough. Having a teenager is hectic enough and v demanding but a teenager with special needs can push anyone to breaking point. Hang in there even if you feel sometimes you are taking 1 step forward and 2 back. Keep working with your daughter and with your love, perseverence and dedication some information will sink in and some improvements will be made. 

Name: marie | Date: Jul 17th, 2012 3:03 PM
hi my male19yr old is dd, its veryhard and we live in illinois i am trying to place him in a residentialhome with others because he so desire to be independenty,if any no of a place pleaselet me know. 

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