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Name: April
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Name: judy | Date: Aug 23rd, 2011 7:05 PM
My friend who has Down's syndrome may also have schizophenia. Has anyone out there had any experiance with this?? Her parents are at their wits end and seeking information and help daily, as the situation worsens daily.
email; [email protected] 

Name: Helen Kingdon | Date: Aug 27th, 2011 11:37 AM
Hi everyone!! I am a mum of a 14 month old girl who has Down's syndrome. She is our second child and a much loved part of our family. We had a high risk triple test but declined the amnio.

To all parents, you are NOT alone!! Check out our big beautiful family on Future of Down's.

It is a new resource for parents of children with Down's syndrome. The forums and the links to charities, positive stories & blogs and other success stories are invaluable.

www.futureofdowns.com

See you there!! 

Name: Fauchick89 | Date: Sep 6th, 2011 4:34 AM
I was wondering if there is anyone who would be willing to help me on a school project in regards to children with Downs. I only need to ask 5 questions about the child(ren)'s syndrome and your reaction. Very simple questions. I know it might be a touchy subject, but everything will be kept in confidentiality. Can someone please help me? If I don't find someone to interview about their child, then I fail this class :( Thanks for your help.

Rosie
Florida Atlantic University Student 

Name: diane | Date: Sep 9th, 2011 10:53 AM
hey april, i a mum off a girl called paige age 5 who is down syndrome. i had no idea paige was downs until she was born. my scan and doctors appointments were all normal just lyk my previous pregenies. eastendera was doin a story line in a baby with down syndrome @ the tym i was havin a planned section with paige. when the nurse let me c her, i new she was differnt but only cos off the soap. paiges features was the small eyes and the small mouth with the big tongue. i found out when i was took to the recovery room they z that there was signs off paige bein downs and they wld carry out test to confirm it. i asked them to show me how they could tell, thats when they explained all to me. she had the features in her face, back off her neck was just a bit off fat, the palm off her hand. i was just waitin for blood test to confirm it. i was shock'd but i wouldnt change her for the world x 

Name: Christie Schulz | Date: Sep 12th, 2011 12:57 AM
My name is Christie and both of my children have downs. My daughter is now 18 and my son is 16. I found out at birth that my daughter had down syndrome. I only had the standard triple test in which did not pick it up that she would have down syndrome. When i got pregnant for the second time my husband and i along with our doctor decided to have an amnio due to complications i had during delivery with my daughter. 

Name: Jackie | Date: Sep 14th, 2011 10:38 AM
Hello April
I had a baby son with Down's syndrome, I found out after he was born as I refused to have prenatal tests, as a positive result would not have changed the love I already felt for my unborn baby. He was born with a heart condition that nearly killed him, but luckily he had life saving open heart surgery. He is now a healthy 2 year old.
It worries me that there are so many people who feel the need to make cruel and sick remarks about people with DS. If more people had Down's syndrome, the world would be a much nicer place. My son is a delight and I would not choose to have him any other way, I am so pleased that my life has been blessed with him. 


Name: sora f | Date: Sep 20th, 2011 10:44 PM
hi april, my daughter just turned 7 years old. i found out she had down syndrome the second she was handed to me. i am in education/special ed. i didn't need a doctor to tell me. i just knew it. i was always concerned that i would have a child with down syndrome - i dont know why. i even told my husband that at 35, we have to stop having kids due to the risks of having a child with downs. i had her at 32. she is my third child. yes, i had two more. every child is a blessing despite all their challenges. she is doing very well. yes, i had sonograms and they said eveything was fine. she did not have any health issues and continues to be one of my healthiest children. Good luck! 

Name: lynn | Date: Sep 24th, 2011 12:44 AM
i am a parent of a 24 year old girl with downs, i never knew anything till she was born, i had ultrasounds during birth, but it was never found 

Name: Shaunda | Date: Sep 25th, 2011 6:35 AM
Hi I am a 29 yr old mother of two youngest havin downs. We didnt find out for two weeks after his birth. After one week i had some feelings of a problem but not knowing anything about downs, didn't suspect that. The doc came to us and said they done some testing but now know they were wrong and he was fine. The next morning he pulled us into a room and said he should have never spoken to us without waiting on test, he was sorry but wrong and our son had downs. He ask if we had any questions. At that point i didn't know what to ask. Aden is going on six and we have been so lucky with him. He is healthy as can be! Needs a whole lot of attention and takes so much time but he is our little boy, my baby. 

Name: Shaunda | Date: Sep 25th, 2011 6:44 AM
Hi I am a 29 yr old mother of two, youngest havin downs. We didnt find out for two weeks after his birth. After one week i had some feelings of a problem but not knowing anything about downs, didn't suspect that. The doc came to us and said they done some testing but now know they were wrong and he was fine. The next morning he pulled us into a room and said he should have never spoken to us without waiting on test, he was sorry but wrong and our son had downs. He ask if we had any questions. At that point i didn't know what to ask. Aden is going on six and we have been so lucky with him. He is healthy as can be! Needs a whole lot of attention and takes so much time but he is our little boy, my baby. 

Name: Desire | Date: Oct 15th, 2011 8:12 AM
I am 24 my daughter is going to be 2 nov 23 I found out threw the blood test they gave me when I was in my first and last trimester I believe, they both came out positive.so I did an amnio and I found out she was downs and that it was a girl I have pictures of her chromosomes if you'd like.my percentile was 1 in 7 chance of her being downs i was sapposed to be 1 in like 2000 or some thing my boy friend has downs on both sides hes family hes mothers niefew and hes dads niece .Any other info im more than happy to help 

Name: Desire | Date: Oct 15th, 2011 8:19 AM
Also any moms that are struggling with the news of your baby being downs please contact me I can send pictures experience and advice that might help.these kids are very special don't let anything or any one change that. I'd be nothing with out both of my kids.downs or not.. My email is [email protected] 

Name: CARLA read this | Date: Oct 15th, 2011 8:29 AM
Omg Carla instead of feeling like that you should love your child yes it's har but if your friends and family sent there for you that's they're problem your a mother start acting like one weather our kids come out healthy or smart or different theyre still our kiss please please get help that baby will have a bad life if you do t except that this is what it is.please please get help so you can realize it isnt thy bad and ou have a blessing.any time you want to talk please contact me..... [email protected] 

Name: Kelly | Date: Oct 19th, 2011 8:43 AM
I am a 23 year old woman went for my 12 week scan and found fluid all over the baby I've been given a 1-2 chance of a d/s baby can't believe this really after i had a miscarriage 4 months ago, I'm going to Southampton tomorrow for more scans and the cvs test which I think they put a needle through your belly to test the fluid in the placenta, it's a load of rubbish when they say you have a higher risk of having a baby with d/s when your over 35 because I'm only 23, has this happened to anyone and there child didnt have d/s when they were born? 

Name: Tammy | Date: Nov 3rd, 2011 3:42 PM
I am doing a research paper on kids with Down syndrome and am really hoping I can get a parent to interview. Everything personal, such as names, ages, etc. will be kept confidential. If you are willing to share please let me know. My email is [email protected] Thank you for your help! 

Name: Tammy | Date: Nov 3rd, 2011 3:50 PM
Hello, I am doing a college research paper on kids with Down Syndrome and I am really hoping I can interview a willing parent about their experience. All personal information will be kept confidential, such as name, birthdate, etc. Please let me know if you are interested, it would really help me out! 

Name: kyaw swar win , Myanmar | Date: Nov 21st, 2011 9:09 AM
I had one down syndrome baby, we know he is down after birth(8 month born) and died after two month. Now we get next baby(normal girl) after one year later. when before she come out, we worried about she. when we get down baby, we was 35 years and now we are 37 years. our first baby is boy ( normal) and he born in 2001 and the second (down) was born in 2010 and the third baby(normal) was born in 2011. 

Name: melissa nicole | Date: Dec 21st, 2011 2:13 PM
Im 18 years old and recently had a child with downs I did not know while I was pregnant that she would have downs the day she was born was the best day ever thats untill the nurses took her and when the nurse brought her back she had a Dr. with her the Dr. looked at me looked at my fiance and then at my beautiful daughter Meaghan and then said there has been some concerns as he went on he started saying everything that was wrong with my little girl like she was some kind of monster I had 1 more dr examine her before we got the blood test done and he said the same things so I took her to oklahoma city and they did a blood test and they called and told me that her test was positive meaning the test showed her extra chromosone 

Name: Sara | Date: Dec 22nd, 2011 5:05 AM
I learned that my 7 week old son has Downs when he was 1 week old. The doctor suspected this diagnosis and sent blood for genetic testing. I has all of the screenings while i was pregnant which all came back negative. 

Name: sarah | Date: Dec 30th, 2011 6:11 AM
Anyone to chat? 

Name: luella'hair | Date: Jan 8th, 2012 3:33 AM
I have a beauty full daughter.her age is thirteen.we have bought her everything to help.her learn to read.nothing seems to help.any suggestion. 

Name: Jamie | Date: Jan 13th, 2012 5:18 PM
i found out when i was still pregnant and they seen 2 holes in her heart adn they said its a possibilty that she could have down syndrome and she does and in march they are going to do surgery to correct the holes in her heart. 

Name: jamie | Date: Jan 13th, 2012 5:19 PM
my baby has down syndrome and she is 2 months old and im wondering when they are suppose to be doing stuff like sitting up and all tht stuff 

Name: Julie | Date: Jan 28th, 2012 4:35 AM
After birth 

Name: Erin | Date: Mar 12th, 2012 6:12 PM
I am in high school and i am having the same problem finding the perfect research for a research paper I am doing on Down Syndrome. If you can be of any help to me then please e-mail me at [email protected] or you can always find me on Twitter. Follow me @iErinNicole. Thank you in advance. (:
- Erin Nicole Gragg 

Name: jackie | Date: May 31st, 2012 2:01 AM
I found out Shayla had down syndrome after she was born. 

Name: Victoria | Date: Jun 26th, 2012 3:48 PM
First - if you are going to do research - please be acurate - it is NOT down syndrome child --- it is child with Down's Syndrome --- DS is a condition, not an adjective - you would never say the diabetis baby 

Name: Tealeaf | Date: Jul 15th, 2012 1:51 AM
CHECK IT OUT!

http://enabled2fightny.weebly.com

This is a new website that is dedicated to special needs children.

Spread the word. 

Name: Sheila | Date: Oct 22nd, 2012 7:59 AM
I know that many people can go against my views but keeping a baby with downs is not a thing I could ever consider some of downs children or adults have more complications in life later not fulfilling a normal and happy life and which tax payers fit the bill to comfort their existence in a bit more normal life I don't see how this is fair to put upon a person 

Name: Luke | Date: Oct 22nd, 2012 8:05 AM
I agree with Sheila I mean its not fair on the person with downs to be living like this people need to forget about the emotional attachment and think about the quality of life and to the fact what do they bring to society? In reality nothing!!! They don't reproduce many of them are in pads and many if them have problems with speech. I know they look cute but freaking hell they are parasites be gone with them pple 

Name: amber | Date: Jan 10th, 2013 9:18 AM
i am a mother of a down syndrome little girl i didnt find out that she had down syndrome till she was six months old every down syndrome baby is different have different sign of it the only way we found out is she had low muscle tone and 2 other things if u looked at my daughter u cant tell that she even has down syndrome which is why it took so long for her drs to relize it 

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