| Name: babyhuie61 | Date: Oct 21st, 2006 3:10 AM |
Hi mary. My name is Cindy. I ahve a 15 yr old daughter named sarah who is globally delayed. This means mentally and physically. She has had a rough go of it, and she also suffered an acquired brain injury at school when she fell and fractured her skull. You can get a hold of me anytime.
cindy ↑ |
| Name: Lily | Date: Oct 21st, 2006 10:04 PM |
| Hi, my name is Kathy. I have a son who is Autistic. His name is Travis. Has the doctors diagnosed your child yet? The reason I ask is because my son has to go to all of those things too. Travis is 10yrs. old now. Has been going to school since 3yrs. He loves school!! I'm glad or it would be really hard on him. I know how you feel about being alone. I live out in the country and I'm the only Mother that has an Autistic child. I have no friends, but would love one!! Type back. ↑ |
| Name: charlies_mum | Date: Oct 24th, 2006 8:45 AM |
Hi Mary
You arnt alone and as I sit here and read another cry for help it brings tears to my eyes because nobody knows how it is with a disabled child unless it happens to them. Its heart breaking to see your child struggle and be looked at, teased and everything else that goes with it. We all keep going because WE LOVE OUR KIDS. Look deep and see how strong spiritually you will become. I think myself lucky and privledged that god has entrusted this little soul to me to care for. I know this medical system is crap, I too was put off by doctors thinking I was a neurotic first time mum. Its hard and I dont think it gets any easier but we all have to stick together for support because nobody else is going to give it. ↑ |
| Name: sullykidsmom | Date: Jan 8th, 2007 4:28 PM |
| I am going through the same feelings that you are. Sometimes I just wish that when I go to sleep I'm going to wake up the next morning and everything is going to be all better. I have four other children and my youngest has been diagnosed with CP. I feel alone at times and have virtually lost all contact with my friends. I need someone to talk to that can relate as well. You can email me to talk if you would at [email protected] ↑ |
| Name: lkng4help | Date: Jan 19th, 2007 11:54 PM |
| Hi I would love to find out more of your situation. Has your son been diagnosed (what Chromosome(s)) Our son has a dletion in one of his chromosomes we found out when he was about the same age as yours. He is globaly delayed and enroled in a special education as multiply disabled. I can totaly relate to the isolation of having a child with this problem. People tend to remove themselves from situations where they may feel uncomfortable. Our son is now 11 and he is now going through puberty. As you can imagine this is creating a whole new set of chalanges....please if you think we may be able to give you some guidence feel free to contact us ↑ |
| Name: leila-marie | Date: Jan 24th, 2007 9:32 PM |
| is it a girl or a boy becuse i need have friend ↑ |
| Name: leila-marie | Date: Jan 24th, 2007 9:34 PM |
| my friend got that what u son got sorry about that ↑ |
| Name: jla16 | Date: Jan 29th, 2007 12:44 AM |
| Hello, I am a signle mother of a 7 year old autistic child. I know how you feel about not having any friends. All of my friends from high school are no longer in contact with me. I feel the same way in thinking I'm better off without them, but am still dealing with being alone with no one to talk to besides my parents. And trust me it does get better. The littlest improvement or accoplishment or something new he does or learn will show you that it is all worth it. You just have to hang in there and find at least one friend who truely understands, cares and is willing to listen, talk with you and be there for you no matter what. ↑ |
| Name: Alyson Maire | Date: Feb 4th, 2007 3:00 PM |
| Hi Mary, my name is Alyson and I definateley understand how you feel. My son is now 8 and has had problems forever but didnčt get a diagnosis until just recently. I have always felt it will be easier to things alone, especially with behaviours that can arise. But this does get lonely. I really understand what you are feeling and if you need support dont hesitate to contact me. ↑ |
| Name: suzi | Date: Apr 5th, 2007 2:52 AM |
| Mary: I looked all night for a website like this. My son is developmentally delayed with low muscle tone and severe food allergies. they still haven't told me what he really has if they can figure that out at all. He goes to pt, ot and speech. I find myself frantic for him to stay friends with his preschool buddies but i see that his differances are starting to show. I kept him back for preschool for another year and yet he is still not really ready for kindergarden. He has trouble with social cues and tells me his brain isn't working right because he has such a hard time concentrating. i have been so relaxed about this but now i just am frustrated and he asked me today if i was mad at him ...it is just so hard. i feel so alone and am recently divorced and have sole custody. it is so hard to do all these decisions on your own. i realized today that i need an outlet as people around me have no idea what it is about. i would really like to chat with you and anyone else. I really want to be there for my son and it is so hard to see that kindergarden is going to be so hard not the fun place i had experienced. ↑ |
| Name: r3kidsmom | Date: Apr 5th, 2007 8:13 PM |
| dear mary,i know just how you feel,i think we must all go through this,half the time i keep contact with the few friends i have left via e-mail or the phone,my son is special needs also he was our 3rd child we have a daughter turning 21 and a son who' s19 our youngest will turn 10 in june,so many of my friends after he was born just didn't know what to do so they walked away,the ones that stayed have been a blessing,but i feel bad that i don't have time for them,my son was born with a very rare genetic disorder,he suffers from myoclonic seizures among other things.i would love to talk with you and also we can both offer support.hope to hear from you.robin ↑ |
| Name: lkng4help | Date: Apr 27th, 2007 5:58 PM |
| my son is now 11 currently he is having an outbreak of exzema on his ears. With his compulsive behavior he tends to pick anything on his skin. His ears are suffering as a result. (He has a translocation of chromosomes 2 and 13 with some missing material from i think 13 ) Another thing we have to contend with is he is now going through puberty OMG. He has a hard time communicating as it is and now he is being flooded with hormones. Does it ever get eaiser??? Now we are fighting with the school they will not bring in an aid in his class to help keep him on task and they have decieded he has reached maximum potential in PT so thy will be discontinuing this next year. We had an advocate come with us to his IEP and she argued with us but to no avail. ugh ↑ |
| Name: katfeet | Date: May 16th, 2007 8:57 AM |
| I raised a son with ADHD, ODD and BiPolar. He will be 24 in June and he is much better but still has issues. He is by baby and always will be. It has been really tough though. I was having him tested when he was 13 months old because the schools wouldn't test him any younger. I knew something wasnt right but you know how doctors are they think mothers are stupid and dont know what they are talking about. My prayers are with you and if you need someone to vent to I listen real well and I will respond to you if you write to me. Kathy ↑ |
| Name: lucinda | Date: Jun 12th, 2007 8:43 AM |
Hey there mother of two if i may call you that,live never seems as if its going to get better i have one kid.....he is a handfull
i never have time to make friends and he takes up all my
time,but what can we do our kids are a blessing........
dont give up things will better itself
lucinda ↑ |
| Name: channa | Date: Jun 14th, 2007 8:29 AM |
| hi, i need to speak to someone pls.... ↑ |
| Name: Rod | Date: Jun 21st, 2007 4:25 AM |
| need to speak to someone ↑ |
| Name: vijji | Date: Jun 25th, 2007 3:00 PM |
hi
this is first time chatting with a friend. a mere touch is enough to communicate with any body. if it is the baby . it better understands its mother or father by the very touch. i hope the time may show a way out ↑ |
| Name: sensi | Date: Jul 18th, 2007 8:58 AM |
| hi im 22 married i have a lil boy who is two. im a stay at home mom and it can be lonely. just wanted a friend to talk to. you can reach me at [email protected]. if you wanna talk ↑ |
| Name: shirley | Date: Jul 20th, 2007 2:26 AM |
| I have 5 beautiful daughters aged 15,twins 10, 9,7. because i have chronic back pain. I don't get out much so i don't have many friends and would love to be your friend. I am a stay at home mum and love it because i get to spend time with my girls. Hang in there things will get better i was hit by a truck when i was 6 and i was paralyzed down the left side but now i have 5 girls and am managing quite well. I believe you should never say never all things are possible. I hope we can be friends. ↑ |
| Name: VB | Date: Jul 20th, 2007 10:46 AM |
| Wow, five girls, no wonder you don't get out much, that's a lot. I have a 6 yr old boy and a 3yr old girl and I thought that was a lot of work. However when I hear of people have three boys or five girls, whew, I'm thankful for just my two. I had my tubes tied after number 2 since that is all we really planned for.Nice to meet you. Both of my children are deaf but hear and do well with their cochlear implants. ↑ |
| Name: shirley | Date: Jul 20th, 2007 12:46 PM |
| Hi VB thanks for answering my message my girls are 15 ,10 ,10 ,9 and 7. How are your kids mine have all had the flu lately including my husband and now i have it this is a bad time of year for colds. Lovely to meet you keep in touch please. ↑ |
| Name: VB | Date: Jul 20th, 2007 11:16 PM |
| Sorry about the flu, we are all well here in Alabama. I am a volunteer so I monitor several forums and try to help those who may have been newly diagnosed w/hearing impairments. You'd be surprised at how many there are...enough to keep me busy!! ↑ |
| Name: shirley | Date: Jul 21st, 2007 4:35 AM |
| Hi VB I live in Queensland and at the moment it is 3 in the morning to 20 or 21 degrees, Celsius. Your job sounds very interesting my husband works at a health lab at Rockhampton Hospital he tests blood and urin and pathology work. I always wanted to be a nurse but because of my accident I was unable. I hope you are well and happy and yourkids are fine keep in touch love your new friend Shirley ↑ |
| Name: shirley | Date: Jul 21st, 2007 11:16 AM |
| hi Sensi how is your little boy i have 5 lovely daughiers cassandra 15 Alissa and Sarah 10 Tiffany-anne 9 and Karina she is 8 yrs i love being a mum it is very tiring at times though. Hope we can be friends and keep in touch from Shirley ↑ |
| Name: VB | Date: Jul 21st, 2007 8:17 PM |
you can contact me through my blog if you want
www.deafkidscanhear.blogspot.com ↑ |
| Name: Sherry | Date: Jul 25th, 2007 6:28 AM |
| Hello Mary - my daughter is almost 22 - she has epilepsy - grand mal seizures, autism, non-verbal, incontinent and developmentally a toddler. She has been through it all - if you need to talk - I'm here - I've cried, gotten mad, sad, solemn, .... there isn't an emotion I haven't gone through - but when it is all said and done - this is your child - and you're all he has. Do you have a Special Athletes program in your area? These are great people that take the kids on outings with the parents and other siblings and then to Special Olympics - it is a fantastic group of people - they all know what you are doing. Kandi has had some incredibly bad behavior at times - for months at a time she would do nothing but scream - I thought I would lose my mind - I didn't - You will be ok - I promise. ↑ |
| Name: tolani | Date: Aug 5th, 2007 4:28 PM |
| Name: Rose | Date: Aug 7th, 2007 9:44 PM |
| I am really sorry you are feeling so isolated from the world. May be we can help each other because since my husband retired from work I too have become isolated from every body is used to call my friends and just the other day my best friend (so called) ended our friendship, because I wasn't going to see her . ↑ |
| Name: Shirley | Date: Aug 9th, 2007 2:28 AM |
| hi Rose i too would love a new friend i have 5 lovely daughters but because of a disability from my childhood i find it hard to get out or walk very far finding it hard to make friends and i would love to be yours. ↑ |
| Name: Shirley | Date: Aug 9th, 2007 11:49 PM |
| hi VB sorry i haven't written in a while computers been playing up and can't get e-mails. Hope you and your family are well it was my birthday on the 4th of August and our anniversary was on the 6th we have been married 19 years. We were married in 1988 that sounds like a long time doesn't it. Sarah one of my twins came second in the Japanese contest and ran in the 2.5 km school run (thats two times around the school and one and a half times around the oval) she came 8th in the girls. She did it with a broken jaw she found out her jaw was broken afterwards. Hope your well and happy from your friend Shirley ↑ |
| Name: VB | Date: Aug 10th, 2007 6:34 PM |
| Yes, we are all well, just busy. School started for us on Thurs. I was so excited!! Stay at home moms tend to be excited I believe, a little moment to ourselves.My son is in first grade and daughter in a two hr preschool program. It's 103 degrees (F)here, no joke. How is school in Queensland? are you in or out, some people are never in or out. nice to hear from you. ↑ |
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