| Name: vb | Date: Oct 17th, 2007 5:09 PM |
shirley, hope the girls are better! we don't even have a surgery scheduled yet, they may want to wait a couple of years or may want to do it now, who knows.?
Tammy, do you not have someone from Children's Rehab Services helping you? I couldn't do it all either. You need to google your state's name w/the words Children's Rehab Services. Then contact them so they can send people out to help you. I was told recently by the behavioral specialist and my daughter's preschool that ALL children need structure and need to learn consequence for their actions. Of course this was preschool and we were discussing time out...she said they stay in time out one minute per their mental age. Look into getting some outside help. You should be able to find some help at no cost to you! I will say that all kids would probably behave this way too if they could. Meaning, sometimes we don't discipline our kids or even know how to give them structure unless someone shows us, especially if they have a disability. I don't know where I'd be without people surrounding me, telling me what to do and learning how to handle certain situations. You're just doing the best you can w/out help so I'd suggest you find someone to help you. Your mom probably don't know what to do either. You need a professional to come by once per week or so and help teach you and if you already have this, you need to talk about these biting episodes so she/he can help you find a solution. good luck ↑ |
| Name: Shirley | Date: Oct 22nd, 2007 7:12 AM |
| Hi VB how r u all? I hope you are all happy & well. Our family are fine.Today is a pupil free day and the kids are all home. We got our Siamese cat Melinda desexed (or to you in America neutered)last week. But she got into a cat fight and cost $87.95 for vet bill. They should be shot charging so much to fix our little felines. Well david (my husband) just came home so I've got to go. From your far away friend Shirley ↑ |
| Name: vb | Date: Oct 22nd, 2007 11:57 AM |
| Shirley, funny story I had to share: My three year old was on the porch playing w/the cat. I hear a loud "reeeow" so I go check on the cat. My daughter was teaching the cat to write. She had a pencil stuck between it's "toes" and was was teaching it to write her name! Poor cat, she's fine though.She also gives the cat speech therapy just like she has. I'll hear her telling the cat,"say babebo". She has to do nonsence babble practice during her speech therapy. Anyway, thought it was funny. ↑ |
| Name: satish | Date: Oct 29th, 2007 1:30 PM |
im so sorry to here this
i will pray for the god ↑ |
| Name: Samantha | Date: Oct 30th, 2007 5:39 AM |
| you need to talk, talk to me I'm on at [email protected], I have 2 kids that are challenged to put it gently. I would talk with you because I struggle too with my life. ↑ |
| Name: jojo | Date: Nov 3rd, 2007 7:49 AM |
| Name: sheryl | Date: Nov 10th, 2007 10:34 AM |
| hi, im also a mother of 2 i have a 2yr old daughter she is so beautiful and very smart i also have a 6yr old who is mentally only 18months with adhd and very bad behavior, he aswell is beautiful and very happy but also a big hand full at times and i know how you feel about the doctors appointments sometimes it seems just to much, me too have not much of a social life im a 25yr old single mom my grandmother use to help me with my son eg. give me a break but she died with cancer and i felt lost and alone i fell into depression now its be 2yrs since i lost her i still miss her and wish she was here, and yes i dont know how to cope at times as the people i do talk to dont understand because there not in my shoes they dont know how it feels and i hate when they say they do and when they say tomorrow will be better when i know it will be the same as every other day but maybe just a bit harder. i just want to talk to some one who is going through the same problems . ↑ |
| Name: sheryl | Date: Nov 10th, 2007 10:41 AM |
| hi mary sorry about my last reply and loading you off with all my problems i am sorry about what you are going through. im new to this i thought i had to write about myself not to someone im sorry. ↑ |
| Name: samuel | Date: Nov 10th, 2007 12:47 PM |
| Hi, i needa nice friend that i can chat with. ↑ |
| Name: L J | Date: Nov 15th, 2007 9:10 PM |
| HI SAMUEL MY EMAIL ADDRESS IS [email protected] we can be friend. ↑ |
| Name: caz | Date: Nov 16th, 2007 11:45 PM |
| i have a daughter in her first year at uni. has been a horriblefirst few weeks then a friends son died from meningitis this week after beintg at uni for 5 weeks. am just at a loss to know how to cope ↑ |
| Name: caz | Date: Nov 16th, 2007 11:50 PM |
| am so sorry darling for sounding so unsympathetic. it is sodifficult when u dont have any support or at least anyone to talk to ↑ |
| Name: obinna | Date: Nov 24th, 2007 7:24 PM |
| i want to sapken to my friends.who weant to my school ↑ |
| Name: tasheka | Date: Nov 24th, 2007 7:26 PM |
| i want to sapke to my friend ↑ |
| Name: obinna | Date: Nov 24th, 2007 7:29 PM |
| Name: keely | Date: Dec 17th, 2007 11:49 PM |
| i want to make a friend and chat i friends but its fun make in them. ↑ |
| Name: KathyK | Date: Dec 18th, 2007 1:52 PM |
Mary,
If you want friends you have come to the right site. We all know what you are feeling and it does help to find someone else who has walked in your shoes.
I have a 6 year old with O.D..D. and O.C.D. and we (my husband and I)don't have alot of friends either. It is hard to have a child with disabilities and alot of people don't understand. They just think your child is acting out and being a brat and that there is no discipline in the home which is so far from the truth it is not even funny.
We have been blessed by God to move to a developement and meet a few people and one family actually has a daughter with the same condition that my son has. Her mother and I are stay at home mom's and we bounce things off eachother and call eachother when we are having a bad day and yell, scream, cry or just talk whatever we need to do. My sister has a daughter with alot of the same issues that my son is dealing with so that helps too but if you don't have anyone in your area that understands it is hard. We are here for you and will try to help in any way we can. You can e-mail me at [email protected] if you want to talk, would love to try to help even just by listening.
It does get better over time and if you find the right resources to help out. We have been fortunate enough to find an agency to provide wraparound services that have workers come into the home and help us and him deal with his day to day issues.
I wish you luck and remember you are not alone ↑ |
| Name: nikcrik | Date: Dec 18th, 2007 8:25 PM |
| I am also new to this. I have twins who both have CP and are in wheelchairs. I live in a small town and I feel like i'm the only one. Would like to hear from others. ↑ |
| Name: shirley | Date: Dec 21st, 2007 1:33 AM |
| hi vb thanks for the funny story about the cat its stories like that that keeps me smiling its the little things kids do that make life worth while. Merry christmas sorry i havent written in a while I've been at a wedding in Sydney. Hope you have a wonderful Christmas and hope you are all well keep in touch from shirley ↑ |
| Name: vb | Date: Dec 21st, 2007 6:14 PM |
| Hey Shirley, was without power a couple of days due to a strange windstorm that knocked over trees and power lines here. I'm glad you got to go to the wedding, I'm sure it was spectacular. Good to hear from you ↑ |
| Name: shirley | Date: Jan 3rd, 2008 1:11 PM |
| Merry Christmas and a happy new year hope you had a great christmas we stayed at my parents house for the night and the girls loved their presents i got some new clothes and a stuffted toy dog and a couple of books my father in law gave me $100 my little sarah one of the twins) gave me a dimond broach with her own birthday money. Hope to hear from you soon your friend Shirley ↑ |
| Name: vb | Date: Jan 3rd, 2008 4:32 PM |
you can see from my blog, my kids got too much.
www.deafkidscanhear.blogspot.com sounds like you had a nice holiday as did we!! ↑ |
| Name: Tavia | Date: Jan 5th, 2008 11:49 PM |
| I'm praying for you and i know how you feel. I'm going through similiar things I have know one and it seems like evryone turned there backs on me after my son. Let me tell you this YOU are not alone. But it does get better. I need friends myself to just be able to talk to people who is going through what i go through. ↑ |
| Name: silver star | Date: Jan 6th, 2008 5:18 PM |
| Hey Hey, do you no what? it really does irratate me reading things like this, you the parent no your child, do you no what i mean but they we are, because they are the proffesionals then we should belive what they say because after all, there the ones with the quallifacations lol. I really do hope you read this because i am in the exact same sittuation as yourself. My son is four and he is seeing everyone you listed too. Isnt it mind blowing hey? Im not very good at spelling and writing but if you want to talk i will give you my email adress it is [email protected] i hope you get in tuch. take care x ↑ |
| Name: Rebecca | Date: Jan 7th, 2008 1:31 AM |
Mary,
Hi my name is Rebecca i know how you feel my ron ryan has alot of stuff that is wrong and they do not know how to fix everything so have a 5 year old little girl who has her own problems. e-mail me @ [email protected] ↑ |
| Name: Shirley | Date: Jan 7th, 2008 3:34 AM |
| I saw your blog and I thought your kids were cute and funny especially when yur little boy was afraid of the storm. My smallest girl is like that too. We have bought a pool for summer it helps my back to excercise in water. ↑ |
| Name: shirley | Date: Jan 7th, 2008 4:05 AM |
| hi vb how r u your little girl was adorable with all her pink stuff on your web page your little boy is so cute you must be very proud of your children i think your web page is great i liked it imensly it is tiffany's birthday on the 12th of january she will be ten it's also my dad's hope your all well hear from you soon shirley ↑ |
| Name: Liza | Date: Jan 20th, 2008 11:39 PM |
| It Will get better as his language gets better and he learns how to communicate his needs. He will mature and may not have a million friends, but only a few. Make play dates short so that he has a good time and then leaves. You are definitely better off without friends that don't get it. There are many moms who do.Maybe if he later needs a program or special school for half a day you will meet moms you can relate to. Read everything you can about managing his behavior without losing your cool and remember to get out, away from the kids, and have fun as your self for a break as much as you can!! Hang in there ↑ |
| Name: Casi1988 | Date: Feb 4th, 2008 12:47 PM |
| I am sorry to hear about this... I am a new mom and I really need a friend too. My son was born four months ago with spinal meningitis and has alot of brain damage, we arent sure what we have to look forward to long term, but it sure is difficult right now. I hope things get better for you. I cant really give any advice at this moment I am very lost myself. I hope to hear from you soon. Hang in there ↑ |
| Name: vb | Date: Feb 4th, 2008 4:41 PM |
| Hi Shirley, sorry it took me so long. I've got many projects going. How was the birthday? Hope you're feeling well...It's cold and raining here, hope Queensland had better weather. ↑ |
| Name: Jen | Date: Feb 14th, 2008 10:05 PM |
| I lost a all of my friends when my 7 year old was diagonised with Autism. I feel your pain. Feel free to e-mail at [email protected] ↑ |
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